Rare Disease Grants
Rare disease grants help close critical gaps that often delay progress for ultra-rare diseases
Rare Disease Grants
Our Rare Disease Grant Cycle is open exclusively to RDAP members. Grants provide targeted funding to family-led foundations and rare disease organizations working to advance therapeutic development and gene therapy research.
These grants are designed to help close critical gaps that often delay progress for ultra-rare diseases including early research, strategic planning, and development work needed to move potential treatments closer to patients.
The Spring Grant submission window is now closed.
Eligibility requirements:
Rare disease grant partnerships are open exclusively to current RDAP members. A minimum time for engagement/Advising membership will be required to be eligible for a grant.
Grant Size
RDAP members are welcome to submit grant proposals for a tiered system of small, medium, and large grants. Grants will be shepherded by the Advisors to direct optimal partners to their designated size.
Application Criteria
RDAP Grant Stages of Progress
Advising Progress
Progress made since RTWF-RDAP involvement
Grant Goals
Specific goals for grant money
Research Goals
Research aims, protocols, timelines, cost, experimental design, and methodology
Benchmarks
Benchmarks of success for the project
Budget
Ability to be economical with research partners/vendors/service agreements.
Research Plan
The proposed research plan is well-positioned and appropriately mapped to reach aims in the given timeline
Selection criteria:
RDAP Members who received an invite from the program
PAGs, disease foundations and organizations that have identified a strong research partner
Ultra-rare diseases that are non-commercially viable with a patient population of <5,000 globally
Criteria for scoring for Large Grants will also include:
Ability to be economical with research partners/vendors/service agreements. Is the budget fully justified for the proposed project?
Is the proposed research plan well-positioned and appropriately mapped to reach aims in the given timeline?
How would this size of grant award make a noticeable impact on the overall goals of the foundation?